Embarking on a ‘bulldozer’ protocol...shhh, it’s a surprise attack
Due to the sustained relapse of some of my symptoms (such as the intense bone pain, which prevents me from standing longer than a few minutes, intense fatigue and body pain after mild movements, swallowing difficulty, and stuttering, etc, we are now starting the ‘bulldozer protocol’.
The new medication, named Tygacil (an IV Tygecycline), is going to target the inside of my cells (intra-cellular) where the microbes are hiding. Until now, the meds have been targeting the microbes when those microbes were traveling between cells (inter-cellular), but those meds were not strong enough to penetrate inside my cells. Shhh...don’t let the microbes know....it’s another surprise bulldozer attack!
In the spirit of having fun during my treatments, Alex and I have just returned from a lovely holiday in Maui Hawaii celebrating our 22nd wedding anniversary. Like all people, I have my challenges in life, but I have so many blessings and Alex is the best of the best! [We cancelled our overseas travels, so we can stay close to US hospitals, until my IV Central Line is removed. And what a large and beautiful country we have to explore and enjoy.] As my relapse has limited my mobility, Alex was kind enough to drive all over Maui, so we could see the sights, while my body rested in the car. Then we did some more resting at the beach and the pool. I believe the R&R has gotten my body ready for this next 10-week very intense protocol.
While I travel, I continue to infuse my IV meds on schedule no matter where we find ourselves...in grocery stores, at airports, on airplanes, at various events such a friend’s wedding, etc. (I will soon compile a list of unusual places and situations in which I have administered my IVs, as it’s now a running joke at our house). For me, it is important to continue as a normal a life as possible under the circumstances and to have my IV sessions just one of the things I do throughout my day...almost like brushing teeth ;-)
While infusing in public places, I often receive interesting glances from curious people, so (depends on my mood, of course) I use this as an opportunity to share the ravages of chronic tick-borne illnesses, such as Lyme (Borrelia), Babesia, Bartonella, Ehrlichia, Anaplasma, etc.
I have been on the receiving end of comments such as “My cousin had Lyme and was treated with oral antibiotics for 3 weeks and is now totally fine. Why are you having such a hard time?” My answer is always the same: We can think of Tick-Borne Illnesses in 2 categories: acute and chronic. In the acute form, if a person is treated soon after the tick bite (mind you, only 30% of people have the stereotypical bull’s-eye rash), then after a few short weeks of oral antibiotics that person may not ever have to deal with Lyme and it’s microbial “friends” again. If that tick-bite goes undiagnosed and hence untreated, the microbes that the tick transmitted during the bite (and there are many many various bacteria those ticks seem to share), can fester and take a strong hold inside the human body. Hence, the chronic form of the illness is so insidious, sly, sinister, and a very challenging to diagnose (my own journey has likely been 11-13 years old now).
I will report to you during my current 10-week bulldozer journey. During these upcoming very challenging next weeks, I hope to continue to keep my end-goal firmly in mind - that one day I can walk down the street!
My interesting life journey continues. Thank you for your continued love & support and for visiting me at my on-line home.
May health and happiness be yours!
If you'd like to consider donating blood plasma+ platelets, please contact the American Red Cross
THANK YOU for sharing life ♥️
(Platelets+Plasma donations require large machinery,
hence are done at ARC offices not at mobile drives)
Key blog posts:
Like the 133+ million Americans,
TEDx Talk "Why I Smile"
Ready for my TEDx Talk
Pulmonary Hypertension 101
Look Who Woke Up
Heart & Lungs are Fried
Scottsdale Lyme Treatment
Relapse & Snafu
IV Line Infection
I am Walking Now
Will You Remember?
Blocked IV Line - Pass the Drano
Treatments are Working
Lyme Roller Coaster
Going to the Mattresses
Lyme Bulldozer Treatment
One Step at a Time
Focus on Living
IV Pump Demo
Traveling with IV Supplies
Tackling Lyme with IV
Reducing Hidden Inflammation
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