Lyme: the Roller-Coaster
The past month, since my last post, have indeed been a roller coaster of symptoms, nausea, fungal intestinal blockage, immense fatigue but lack of sleep, et al. Some of my old symptoms have flared, such as numbness on my right side, rashes, bone pain, etc but I have a new significant symptom: muscular tremors. My sister-in-law has a terrific idea: I should start wearing only black shirts, so when I spill and drop it all, I won’t need to keep changing clothes.☺ Until now, I hadn’t realized my penchant for pastels. ☺
Currently, as my physical condition has progressed, I have stopped all antibiotics, to get a better sense of the current reality (this particular class of meds can mask some symptoms...but don’t worry, I have temporarily stopped the antibiotics per the doctor’s request). I am still on an anti-malarial treatment for the Babesia (mepron), though (see link to the recent NY Times article about Babesia).
I am focusing on getting thru the next 2 weeks, keeping a detailed list of all symptoms as they occur, and will be heading to see my Lyme Doc so we can plan the next phase of my IV treatments. Of course, this current state is disappointing, but I am honestly doing all that I can to keep well, rested, focused on my goal, and have some laughs along the way, as that is all very healing for the psyche and for my little army of all important White Blood Cells! I have so much for which to be grateful on a daily basis.
I have a crisp clear vision in my mind’s eye: I am symptom-free and cycling with my beloved on our tandem bicycle thru a charming countryside, past rolling fields of colorful flowers. An old stone castle sits high up on the hillside overlooking the medieval town. This vision is so vivid, I can even smell the flowers and feel the sunshine. And so, I am doggedly working towards making my vision of being active once again a reality!
Thank you for sending your good thoughts and right back at you!
May health and happiness be yours!
If you'd like to consider donating blood plasma+ platelets, please contact the American Red Cross
THANK YOU for sharing life ♥️
(Platelets+Plasma donations require large machinery,
hence are done at ARC offices not at mobile drives)
Key blog posts:
Like the 133+ million Americans,
TEDx Talk "Why I Smile"
Ready for my TEDx Talk
Pulmonary Hypertension 101
Look Who Woke Up
Heart & Lungs are Fried
Scottsdale Lyme Treatment
Relapse & Snafu
IV Line Infection
I am Walking Now
Will You Remember?
Blocked IV Line - Pass the Drano
Treatments are Working
Lyme Roller Coaster
Going to the Mattresses
Lyme Bulldozer Treatment
One Step at a Time
Focus on Living
IV Pump Demo
Traveling with IV Supplies
Tackling Lyme with IV
Reducing Hidden Inflammation
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