As was expected, during the last portion of the current 5-week antibiotic hiatus, the microbes have become complacent and come out of hiding. [Although the antibiotics and herbs kill the weaker microbes, some of the more clever bugs encapsulate in an antibiotic-protective coat when they detect antibiotics and then hibernate waiting it out in safety. When the antibiotic levels go down, these clever critters then disrobe their coats and start a system-wide wild party.] I suspect that for these bugs now, the music is blaring, the partying is intense, there is a boisterous conga-line, and an all-around good time. For me, though, that means some significant symptoms have returned. [Symptom list for those interested: arthritis-like joint pains/swelling, bone pain with nodules on the bones, tingling/numbness and weakness in extremities, blurry vision, fatigue, word search, brain fog, confusion, headaches, neck stiffness, significant gastrointestinal issues, body temperature regulation issues, rashes, etc.]
Based upon the current symptoms, we can guess which species of microbes are present and disrobed. Since they are unprotected and unsuspecting, they are now more vulnerable to medications. So, the IV meds are on their way arriving in a few days. Until then, as I write this I have just begun an oral antibiotic regimen to hold me over. In a few weeks time, I add 2 more meds, for a very intense triple-hitter intravenous cocktail (sounds yummy, I know ☺) and supplementing with a thorough oral and IV herbal/supplement regimen. These bugs won’t know what hit them!
Current thinking is that I may have my central line in place for 6 more months (totaling 18 months) before we pull the line. During this next half-year, I may take a month-long hiatus between each antibiotic round. Each hiatus will help us determine what critters are still prevalent. Although we would prefer to rid the body of all the microbes, that is highly unlikely in reality. Rather, we plan to reduce the microbial numbers to a level that my immune system can better manage. I will likely be ‘co-habitating’ with these critters for a long time.
The symptomatic roller-coaster is a very normal and to-be-expected part of the Lyme/Tick-Borne Disease (TBD) journey. Sometimes you think you are now better and the next day you realize there is still a long way to go. To some, it may seem like “Hey, you have been on treatments for 11 months, why aren’t you done yet?”. The reality is that for long-standing Chronic TBD, treatments of 3 - 5+ years are not uncommon in order to get the microbial numbers to more manageable levels. The key is to keep focused on the goal and enjoy life throughout the process no matter the current predicament.
Onwards and forwards I move in this very interesting, marvelous, challenging, and joyous journey called Life. The bugs are once again going to be shown “the door”. With each round, I hope they realize how very stubborn I can be when I put my mind to something (my family can attest to my stubbornness ☺) ... and let it be known to the microbes: I am resolved to win this war!
Wishing you a splendid journey filled with many moments of bliss!
Sending love and light,
Like the 133+ million Americans facing medical adversity today, I too, am on a seemingly insurmountable journey. In the midst of overwhelming calamity, what tools can empower us to get on with the business of living and thriving?
TEDx Talk "Why I Smile"
Ready for my TEDx Talk
Pulmonary Hypertension 101
Look Who Woke Up
Heart & Lungs are Fried
Scottsdale Lyme Treatment
Relapse & Snafu
IV Line Infection
I am Walking Now
Will You Remember?
Blocked IV Line - Pass the Drano
Treatments are Working
Lyme Roller Coaster
Going to the Mattresses
Lyme Bulldozer Treatment
One Step at a Time
Focus on Living
IV Pump Demo
Traveling with IV Supplies
Tackling Lyme with IV
Reducing Hidden Inflammation
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